Time to update about my appointment with my rheumatologist yesterday. My Vasculitis is definitely flaring up but we have a plan of how to treat it. The plan totally scares the crap out of me but it is a plan.
First the easy part- Doctor Boyden wants me to be admitted to Saint Vincent’s Hospital for Rehab and also to see the Rheumatology team there for a second opinion to make sure we are doing everything right. I am not sure when this will happen Doctor Boyden is going to talk to the Young Adults with Complex Disabilities clinic and will set everything up and get back to me. I am hoping it will happen soon and be a really short admission.
Now the scary part of the plan. He has put me on Methotrexate which is an oral type of chemotherapy. The side effects are many and scary and from what I have read and been told pretty much impossible to avoid. I am on 10mg weekly and will take the first dose tonight, I know that I can and will get through anything (especially with my angel friends watching over me) but I would appreciate your prayers all the same.
My Predisolone and lasix doses will be lowered. I will now be on 5mg of Predisolone and 40 mg of Lasix.
Today I had a whole bunch of blood work done that I needed to have done before starting the Methotrexate. Nothing much else exciting going on.
Love to all,
Karen
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2 comments:
I am thinking of you always, you are in my prayers (((smuach)))
Hi Karen,
I am praying for you and hope the methotrexate is tolerated well. I know it is easier said than done, but try not too read TOO much about the side effects. I am an RN usually tell my patients to only look up the side effects of a med once they are already experiencing some sort of symptom. (ofcourse I do tell them to be aware of potential deadly side effects, but otherwise I try not to go into too many details because just thinking about some of them can bring them on. You know for example stuff like itching, nausea, shortness of breath can happen just if you start thinking about them.) I know the side effects of methotrexate can be lousy, but I have had quite a few patients who have toleratated it quite well. I hope you do too. Thanks again for visting my site and offering your prayers for my daughter.
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